Director: Antoinette M. Stroup, PhD
The Epidemiology Services Shared Resource is being developed to support population-based research by providing access to State of New Jersey cancer cases and registry data. The Epidemiology Services Shared Resource will also provide epidemiology consulting for Cancer Institute members conducting investigations in cancer prevention, etiology, treatment and outcomes. This mission will be achieved through services including rapid case ascertainment (RCA) for population-based case enrollment; collection of medical records and biospecimens for population-based cases; abstraction of medical records for study-specific information for population-based cases; linkage of datasets to population-based patient data for diagnosis, treatment, and outcomes studies; oversight and support of population-based study participant recruitment, consenting and interviewing; survey development, administration, and processing; and provision of epidemiologic expertise and collaboration for the conduct of population-based investigations of cancer. The Epidemiology Services Shared Resource will maintain patient and provider confidentiality by acting as the superintendent of patient, physician and hospital contact information for the conduct of population-based research.
These objectives are achievable and dovetail well with the new population science initiative at the Cancer Institute, which resulted in the Cancer Institute housing the New Jersey State Cancer Registry (NJSCR) in 2010, an NCI-funded population-based Surveillance Epidemiology and End Results (SEER) registry covering the State of New Jersey population of 8.6 million residents. The NJSCR also participates in the National Program of Cancer Registries (NPCR), which was established by the Centers for Disease Control and Prevention (CDC) in 1992. New Jersey regulations require the reporting of all newly diagnosed cancer cases to the NJSCR within six months of diagnosis. Hospitals, physicians, ambulatory care facilities, radiation treatment facilities and private laboratories are required to report cancer cases. The State of New Jersey population represents a large number of minorities, with 10% of the 51,000 annual cancer diagnoses in the New Jersey SEER catchment area being African American, 5.6% Hispanic and 3% Asian, making the population ideal for the study of health disparities. While NCI SEER and CDC NPCR contractual funding for the NJSCR covers basic and specifically enhanced registry operations, access to these data for research purposes is not funded by these federal contracts. The NJSCR receives SEER and NPCR contractual funding solely for the conduct of cancer case-finding, medical record abstraction for SEER/NPCR-required information reporting and vital status follow-up. The services of the Epidemiology Services Shared Resource will represent population-based research activities that are outside the scope of the NJSCR operations, and support for research that extends beyond the patients seen within Cancer Institute facilities.
ACKNOWLEDGEMENT OF SHARED RESOURCES
The shared resources of The Cancer Institute of New Jersey are specialized service facilities that support the cancer research efforts of our members.
The shared resources are supported primarily by the Cancer Center Support Grant (CCSG) from the National Cancer Institute. Additional support may be provided from other sources, such as chargeback systems, institutional funding and/or other grants. The support from the CCSG allows the core facilities to provide benefits to Cancer Center members, such as ensured access to services or subsidies to user rates.
Please remember to acknowledge the valuable services provided by Cancer Institute Shared Resources in your research papers, publications and grant applications:
"This research was supported by the [insert name(s)] Shared Resource(s) of The Cancer Institute of New Jersey (P30CA072720)."
(Note: please also consider including the names of individuals from the shared resources if they provided any intellectual input or additional effort.)