Needs Survey for Childhood, Adolescent, Young Adults (CAYA) Cancer Survivors, Their Siblings, and Parents/Caregivers.

The primary objective of this project is to conduct a survey of CAYA cancer survivors who have been treated at the Rutgers Cancer Institute of New Jersey (CINJ) in New Brunswick, NJ, or the Valerie Fund Children s Center for Cancer and Blood Disorders at the Children s Hospital of New Jersey at Newark Beth Israel Medical Center (CHoNJ) in Newark, NJ, and their siblings and parents/caregivers to better understand the cancer survivorship experiences.

Utilizing the results of this survey, the investigators aim to identify and understand the psychosocial functioning and needs of CAYA survivors and their families. The work will be used to guide future intervention research that focuses on improving the cancer survivorship experience at CINJ and CHoNJ for children, adolescents, and young adults as well as their siblings and parents/caregivers.

Specific research questions include:
1. What is the current psychosocial functioning of CAYA survivors, siblings, and parents/caregivers? What factors are associated with better outcomes?

2. What are the healthcare management needs of CAYA survivors and their families? What factors are associated with better healthcare self-management and health behaviors?

3. To what extent has cancer impacted CAYA survivors relationships and educational/career/employment aspirations and functioning?

4. What are the unmet needs of siblings?

5. What are the unmet needs of parents?

For further information about clinical trials, please contact us at 732-235-7356.