Research Overview
The New Jersey State Cancer Registry
The New Jersey State Cancer Registry (NJSCR) collects and maintains population-based cancer surveillance data for the over 50,000 cases diagnosed and/or treated each year in the State of New Jersey. With a repository of more than 1.8 million cases diagnosed from 1979-2017, the NJSCR data will be used for local, state, national and international cancer surveillance programs including the CDC National Program of Cancer Registries (NPCR), the NCI Surveillance, Epidemiology, and End-Results (SEER) Program, the North American Association of Central Cancer Registries (NAACCR), the International Agency for Research on Cancer (IARC), and global surveillance on cancer survival through the CONCORD program.
Researchers may request NJSCR data through the Cancer Surveillance Research Program (CSRP). These data are provided for the purpose of determining the incidence and etiology of malignant neoplasms and/or evaluating measures designed to eliminate, alleviate, or reduce the impact of cancer. The CSRP collaborates with many researchers to facilitate cancer research using the NJSCR. CSRP services include data requests, registry analytics, data linkages, survey administration, medical record abstraction, and biospecimen collection. In addition to patient demographic and cancer information, the NJSCR provides geocoded data, treatment, and survival data for research.
If you are a researcher interested in conducting an epidemiologic study using NJSCR data, please visit the CSRP website here. Visit Special Studies and Publications for examples of how researchers have used NJSCR data.
The New Jersey State Cancer Registry (NJSCR), under the direction of the State Department of Health in partnership with Rutgers Cancer Institute, has been awarded a seven-year, $9,085,109 contract (75N91021D00009) from the National Cancer Institute (NCI) to support core infrastructure and research activities as part of the Surveillance, Epidemiology, and End Results (SEER) Program. Read more
Cancer Surveillance Research and Cancer Health Disparities
Cancer disparities are often identified from population-based surveillance data that are routinely captured by statewide cancer registries like the NJSCR. Dr. Stroup’s expertise in cancer surveillance research and descriptive epidemiology has led to research that not only advances methods to assess the burden of disease in large geographically-defined populations, but has led to a growing disparities research portfolio to identify special populations that might be at greater risk for cancer or are underserved. This field of study requires expertise in epidemiological methods and cancer surveillance, but also requires a multidisciplinary team of investigators with specific subject matter expertise covering the cancer care continuum from screening among unaffected populations to long-term cancer outcomes and survivorship. Combining her expertise with subject matter experts has resulted in important contributions in the areas of surveillance methodologies, cancer screening, and population-based outcomes and disparities research.
Cancer Surveillance Research
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Stroup AM, Cho H, Scoppa SM, Weir HK, Mariotto AB. The impact of state-specific life tables on relative survival. Journal of the National Cancer Institute Monographs (2014) 2014 (49), 218-227. Doi:10.1093/jncimonographs/lgu017. PMID: 25417235.
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Crosbie AB, Roche LM, Johnson LM, Pawlish KS, Paddock LE, Stroup AM. Trends in Colorectal Cancer Incidence Among Younger Adults -Disparities by Age, Sex, Race, Ethnicity and Subsite. Cancer Med. 2018 Aug;7(8):4077-4086. doi: 10.1002/cam4.1621. Epub 2018 Jun 22. PMID: 29932308 PMCID: PMC6089150.
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Kulkarni A, Stroup AM, Paddock LE, Hill SM, Plascak JJ, Llanos AAM. Breast Cancer Incidence and Mortality by Molecular Subtype: Statewide Age and Racial/Ethnic Disparities in New Jersey. Cancer Health Disparities 2:e1-e17, 8 Jul 2018 doi:10.9777/chd.2018.10023. Not in PubMed.
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Benard VB, Watson M, Saraiya M, Harewood R, Townsend JS, Stroup AM, Weir HK, Allemani C. Cervical cancer survival in the United States by race and stage (2001-2009): Findings from the CONCORD-2 study. Cancer. 2017 Dec 15;123 Suppl 24:5119-5137. doi: 10.1002/cncr.30906. PMID: 29205300.
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Roche LM, Niu X, Stroup AM, Henry KA. Disparities in Female Breast Cancer Stage at Diagnosis in New Jersey - A Spatial-Temporal Analysis. Journal of Public Health Management & Practice, 2017 Sep/Oct;23(5):477-486. doi: 10.1097/PHH.0000000000000524. PMID: 28430705.
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Petkov VI, Miller DP, Howlader N, Gliner N, Howe W, Schussler N, Cronin K, Baehner FL, Cress R, Deapen D, Glaser SL, Hernandez B, Lynch C, Mueller L, Schwartz A, Schwartz S, Stroup A, Sweeney C, Tucker T, Ward K, Wiggins C, Wu XC, Penberthy L, Shak S. Breast cancer-specific mortality in patients treated based on the 21-gene assay: A SEER population-based study. Nature Partner Journals (npj) Breast Cancer, 2016 Jun. PubMed PMID: 28721379.
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Lewis DR, Chen HS, Cockburn MG, Wu XC, Stroup AM, Midthune DN, Zou Z, Krapcho MF, Miller DG, Feuer EJ. Early Estimates of Cancer Incidence for 2015: Expanding to Include Estimates for White and Black Races. Cancer 2018 Mar 6. doi: 10.1002/cncr.31315. [Epub ahead of print] PMID: 29509274.
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Stroup AM, Harrell CJ, Herget KA. Long-term survival in young women: hazards and competing risks after thyroid cancer. Journal of cancer epidemiology, 2012; 2012:641372. doi: 10.1155/2012/641372. Epub 2012 Oct 2. PMID: 23091489.
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Stroup AM, Harlan LC, Trimble EL. Demographic, clinical, and treatment trends among women diagnosed with vulvar cancer in the United States. Gynecologic oncology 108 (3), 577-583 2008 Mar;108(3):577-83. Epub 2007 Dec 21. PMID: 18155274.
Cancer Health Disparities
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Stroup AM, Herget KA, Hanson HA, Reed DL, Butler JT, Henry KA, Harrell CJ, Sweeney C, Smith KR. Baby boomers and birth certificates: early-life socioeconomic status and cancer risk in adulthood. Cancer Epidemiology and Prevention Biomarkers, DOI: 10.1158/1055-9965.EPI-16-0371 Published 21 September 2016. PubMed PMID: 27655898.
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Tsui J, DeLia D, Stroup AM, Nova J, Kulkarni A, Ferrante JM, Cantor JC. Association of Medicaid enrollee characteristics and primary care utilization with cancer outcomes for the period spanning Medicaid expansion in New Jersey. Cancer. 2018 Dec 18. doi: 10.1002/cncr.31824. [Epub ahead of print] PMID: 30561793.
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Tsui J, Llanos AAM, Doose M, Rotter D, Africa C, Stroup A. Patterns and determinants of abnormal cervical cancer screening follow-up and invasive cervical cancer among uninsured and underinsured women in New Jersey. J Health Care Poor Underserved. 2019;30(2):680-701. doi: 10.1353/hpu.2019.0050. PMID: 31130545.
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Llanos AAM, Tsui J, Rotter D, Toler L, Stroup AM. Factors associated with high-risk human papillomavirus test utilization and infection: a population-based study of uninsured and underinsured women. BMC Womens Health. 2018 Oct 3;18(1):162. doi: 10.1186/s12905-018-0656-3. PMID: 30285820 PMCID: PMC6171187.
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Henry KA, Sherman RL, McDonald K, Johnson CJ, Lin G, Stroup AM, Boscoe FP. Associations of census-tract poverty with subsite-specific colorectal cancer incidence rates and stage of disease at diagnosis in the United States. J Cancer Epidemiol, 2014;2014:823484. doi: 10.1155/2014/823484. Epub 2014 Aug. PMCID: PMC413755
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Henry KA, McDonald K, Sherman R, Kinney AY, Stroup AM. Association between individual and geographic factors and nonadherence to mammography screening guidelines. Journal of women's health, 2014 Aug; 23(8):664-74. doi: 10.1089/jwh.2013.4668. Epub 2014 May 27. PMID: 24865409
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Kinney AY, Howell R, Ruckman R, McDougall JA, Boyce TW, Vicuña B, Lee JH, Guest DD, Rycroft R, Valverde PA, Gallegos KM, Meisner A, Wiggins CL, Stroup A, Paddock LE, Walters ST. Promoting guideline-based cancer genetic risk assessment for hereditary breast and ovarian cancer in ethnically and geographically diverse cancer survivors: Rationale and design of a 3-arm randomized controlled trial. Contemp Clin Trials. 2018 Oct;73:123-135. doi: 10.1016/j.cct.2018.09.005. Epub 2018 Sep 18. PMID: 30236776 PMCID: PMC6214814.
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Henry KA, Swiecki-Sikora AL, Stroup AM, Warner EL, Kepka D. Area-based socioeconomic factors and Human Papillomavirus (HPV) vaccination among teen boys in the United States. BMC Public Health. 2017 Jul 14;18(1):19. doi: 10.1186/s12889-017-4567-2. PMID: 28709420.