Centers for Disease Control and Prevention (CDC): Sickle Cell Disease - The CDC is committed to conducting surveillance, raising awareness, and promoting health education. Here you can find information on sickle cell disease, sickle cell trait, statistics, research, and tips for healthy living.
Embrace Kids Foundation - Embrace Kids Foundation is a non-profit organization founded in 1991 and located in New Brunswick, NJ. The organization provides funding for a variety of services while continuing to support research initiatives and faculty development.
Genetics Home Reference: Sickle Cell Disease - Genetics Home Reference has merged with MedlinePlus. This site provides consumer-friendly information about the effects of genetic variation on human health.
KidsHealth for Kids: What is Sickle Cell Disease - Hey kids, you can learn about sickle cell anemia at this site. If you don't want to read the article, you can listen to it instead. Also in Spanish.
- What is a Gene? Also in Spanish
KidsHealth for Parents: Sickle Cell Disease - The award-winning KidsHealth comes from Nemours, one of the largest nonprofit organizations devoted to children's health. You can read or listen to this informative article.
Also in Spanish.
MedlinePlus: Sickle Cell Disease - Developed by the National Library of Medicine, this consumer health site directs the user to selected online resources on many common diseases, conditions, and concerns.
Also in Spanish.
Merck Manual Consumer Version: Sickle Cell Disease - An overview on the diagnosis and treatment of sickle cell disease can be found at this site.
Also in Spanish.
National Heart Lung and Blood Institute: Sickle Cell Disease - Here you can learn all about treatment, clinical trials and also watch videos of patients for are living with the disease.
Also in Spanish.
Sickle Cell Disease Association of America - This organization aims to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.
Sickle Cell Association of New Jersey - This organization assists the sickle cell community, especially adults, with non–medical needs such as, support groups, transition, education, access to research, resource sharing, family follow up and other programs that improve their quality of life.
Sickle Cell Information Center - The mission of this site is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources.
St. Jude Children's Research Hospital: Educational Resources for Sickle Cell & Other Blood Disorders - Scroll down to the "Downloadable Literature" section to access a wealth of information.
TeensHealth: Sickle Cell Disease - If you're a teen, read or listen to this article here. Also in Spanish.
You may also be interested in:
- I Have Sickle Cell Disease. What Should I Know About Going Away to College?
- Transitioning Your Medical Care: Sickle Cell Disease
Interactive Tutorials / Videos
Curing sickle cell disease: A century-long journey - This video is from the National Human Genome Research Institute.
3D Animation - Sickle Cell - This short 3D animation lets you see what Sickle Cell is doing on a cellular level inside your body.
Living with and Managing Sickle Cell Disease - This video presented by the National Heart, Lung, and Blood Institute shows how one person has coped with their Sickle Cell anemia.
Rutgers Cancer Institute: Sickle Cell Disease Transition Readiness Program, Introduction - This video series will help a pediatric sickle cell disease patient transition to adult care. Additional videos in this series include:
- What is Sickle Cell Disease
- Managing Symptoms and Emergencies of Sickle Cell Disease
- Taking Responsibility for Your Own Healthcare
- Getting to Know: Your Medical History,Your Limits, Yourself
- Living a Healthy Lifestyle
- Your Mental Health Matters - Self Advocacy
- Living With Sickle Cell Disease - Personal Stories
July 2024